Thankful Thursday (February 21, 2019): Meltdowns

Today is Thursday and I’m participating in the Thankful Thursday blog hop. I am thankful for all the wonderful people in my life, who stick by me even when I’m struggling.

We have been struggling a lot lately. On Tuesday, we were in an almost-constant state of panic. Our staff tried to comfort us, but it was hard. They were nice though and even though we were very distressed, they didn’t get reactive.

Then Wednesday didn’t start good either. We had to have a blood draw and the laboratory person was supposed to come to our home. She hadn’t told us at what time she’d come though, so I waited for an hour, not having eaten as instructed, and then left. I was in a meltdown already.

Later that morning, once at day activities, I was on the rocking lounger in the yard. The staff had said she’d come get me back indoors “in a while”. Well she looked through the window and saw me rocking nicely, but then when I wanted to get off, no-one saw or heard me. That’s when I melted down again.

And then, in the afternoon, my husband informed me that he wouldn’t be home from work till 8PM. My in-laws couldn’t have me eat at theirs either, so I would have to be alone at home till 8PM. I was in a huge meltdown again and ran out of the house.

Thankfully, a woman who lives further down the street came to me and calmed me and helped me find the way to my home.

In addition to being grateful for all the nice people in my life, I”m thankful for PRN tranquilizers. My husband has them in a locker, because I’ve taken two overdoses on them in the past. I hardly ever use them, so when I had used my last pill, I’d forgotten to ask my husband for a refill. Fortunately, he did yesterday. He reminds me that even though I hardly use them, I don’t have them prescribed for no reason at all.

Weekly Gratitude List (August 17, 2018) #TToT

It’s Friday again. I don’t usually look forward to the week-end, but I love Fridays. They’re a wonderful day to reflect back on my week and remember what I’m grateful for. So here is my weekly gratitude list.

1. A stay at my in-laws last Saturday. My husband was visiting his grandma but, due to her cognitive decline, she would most likely not have recognized me, so I didn’t go. My mother-in-law took me on a walk with their dog and my father-in-law served us homemade pizza for dinner.

2. A long walk on Monday. At day activities, my group usually goes for a short walk on Monday mornings, but there’s another group who walk for like 50 minutes. An extra staff member was available last MOnday, who usually works at the group who go for the long walk but was at my group that day. She asked whether I’d like to walk with the other group while she was my sighted guide. I loved it in spite of a little rain. I really hope that I can regularly go walk with this other group. It depends on whether they think I need a one-on-one guide, which I don’t think I need.

3. Probably the last day for the year I could wear a skirt. Yesterday, the weather was good. It was warm, but not hot and there was a cool breeze too. As a result, I was able to go for another long walk with my support coordinator.

4. Managing half an hour on the elliptical on Tuesday. If I go on the elliptical tonight, tomorrow or on Sunday, I’ll also have crushed my five-day exercise goal. Not that I’ve been on the elliptical that often, but walking counts towards my goal too.

5. A good meeting with the Center for Consultation adn Expertise consultant on Tuesday. We don’t know yet what route she’s going to recommend us going re my care, as the next meeting won’t be till late September. However, I’m glad I was at least somewhat able to communicate my needs.

6. Walking around the day activities center almost with no help. On Wednesday, I asked the staff to accompany me on a walk around the building, so that I could see whether I can learn to do this independently. On my second try, I walked independently using my white cane but the staff was still close by. I’m confident that I can learn to walk this route independently. It’s only about a five-minute walk, but baby steps cunt too.

As you can see, most of the things I’m grateful for this week involve physical activity. I truly love this. I didn’t get to ten things of thankful this week, because I’ve been feeling a little off, but reflecting on the things I can still be grateful for sure does help lift my mood.

Linkign up with Ten Things of Thankful and Thankful Thursday.