My Hopes for 2019

Happy new year everyone! Today and hopefully throughout this month, I’ll be joining in with Just Jot It! January or #JusJoJan for short, organized by Linda G. Hill. Today‚Äôs prompt is to reflect back on 2018 or write about your plans or resolutions for 2019. since I already wrote about my 2018, I’m going to use this post to jot down my hopes, goals and plans for 2019. Here goes.

1. Find suitable supported housing. This is my main hope for 2019. Of course, given my experience with finding (or not finding) supported housing out of the mental institution, I don’t have my hopes up too high. However, I at least want to get long-term care funding approved. That way, even if I don’t find a housing place, I can get more support in my current home than I get now.

2. Get back on track with healthier living. I didn’t gain any weight over the holidays and in 2018, lost a pound or 500 grams, while I expected I’d gained. I’m proud of that, but I’m still obese. Knowing that I’ve experienced some time when my BMI was under 30 this past year, I badly want to lose those two or three pounds it takes to be back at just overweight.

More importantly though, I want to embrace a healthier lifestyle. I want to exercise regularly and eat at least somewhat healthfully.

3. Blog regularly. In January, participating in #JusJoJan means I’ll have something to write about each day, as Linda will be posting prompts. I plan on writing regularly throughout the year though.

4. Get a new computer. I have had this on my list of plans ever since 2017. This year, I’m serious about it though, as I finally convinced my husband too that my current PC is outdated. I am seriously considering getting a Mac, as that’d mean I could do without having to get a screen reader separate from the operating system. I already love my iPhone, but I feel I need a computer too.

5. Stay mentally stable. Over 2018, I’ve not had serious crises other than the one in January that eventually got me kickked out of my old day activities place. I’m still considering terminating mental health treatment once I’ve found suited supported housing. After all, I’m pretty confident that the depression I suffered early in 2018 and that required an increase in my antidepressant dose, was caused by my difficulties coping at home and at day activities. I do still experience trauma-related symptoms, but at this point, they’re manageable.

What are your hopes for 2019?

Small Accomplishments For Today

Yesterday, Girl with the Paw Print Tattoo wrote an interesting post of little accomplishments. She used these to focus on the positive rather than the negative. Like she said, it’s easy to focus on what we could’ve done better, but it’s more helpful to focus on what we did achieve. Today, on the last day of 2018, I am sharing a list of my accomplishments for the day.

1. Got out of bed before noon. My husband got up by 8AM, but it was good enough for me to be up by 11:30.

2. Got showered and dressed. Most people don’t understand that this costs me a lot of energy. I don’t understand it myself sometimes, as I’ve been doing it by myself for so many years it seems obvious. However, it still takes more effort than it would most other people, I think.

3. Ate relatively healthily and not too much. Of course with it being the last day of the year, we had snacks and we had croissants for breakfast too. However, I didn’t eat more than I should have.

4. Went on the elliptical for nearly 30 minutes. This isn’t even a small accomplishment, as it is quite big a deal. Last week, my husband criticized me for having stopped exercising regularly and eating too much. It’s been only a week, but I can already say I’m doing a little better.

5. Was able to sit in the living room with my husband and sister-in-law for two hours without needing to go upstairs to unwind. MY sister-in-law came by for an early new year’s celebration (she left at 9PM). Last year, I was so involved with my special interest du jour that I hardly paid attention to her. This year, I was even able to enjoy it.

6. Didn’t have a meltdown, despite the fireworks and all the things that are unusual on this day.

7. Writing this blog post. I originally didn’t intend on writing today, but then I saw the aforementioned post and I just had to copy the idea.

What “small” things did you achieve today?

Gratitude List (December 21, 2018)

It’s Friday again, yay! Last week I skipped my gratitude list post. Not because I didn’t have much to be thankful for, but because I wanted to write some other things and was feeling sick with a cold. Today, I’m taking my chance to do the post. I have a lot to be thankful for this past week. Here goes.

1. The wonderful Christmas box I got last week. I already wrote about it last week, but I want to mention it here too. I particularly love Snowflake, the stuffed unicorn. I also loved the fleece blanket I got in my package. I sat covered in it on Saturday when my cold was at its worst.

2. My cold being almost over. I am still a little sniffy, but with how bad my cold felt last Saturday, I”m truly grateful it’s much better.

3. My staff being well again. My support coordinator was off sick for a few weeks, but late last week, she returned to work. She first visited me on Wednesday. My nurse practitioner, who was off sick even longer, returned to work this week too. I had a good appoitnment with him.

4. A Christmas meal at day activities. On Tuesday, we had a delicious lunch. It was a little chaotic, but good too.

5. Horseback riding again. It was rainy yesterday, but thankfully we could still go on an outdoors ride.

6. Eating delicious tuna macaroni with my mother-in-law. She went horseback riding with me and after that, I ate at her house. It was just the two of us, so I could decide what we had.

7. The application for long-term care being mailed. It was sent out yesterday. It was a little hard reading the application, because my staff had to fill out how impaired I am in various areas on a 0-3 rating scale. I got quite a few 3s.

8. My husband being supportive. He showed his support of me even when I disclosed some rather embarrassing aspects of the long-term care application (ie. The fact that I am quite impaired in my personal care). He knows to some extent, of course, but still it’s a little awkward to admit.

9. All the Christmas decorations at day activities and some at home too. I didn’t use to like those. In fact, the first Christmas of my psychiatric institutionalization, I even pulled them all off the wall on my ward. Now I like a little Christmassy cheer.

10. The weighted blanket a staff made for my day activities group. She gave it to us a few weeks ago and I may’ve mentiooned it before, but then I mention it one more time. I love being in the sensory room and lying under it.

11. Painkillers. I had bad shoulder pain last Tuesday and still it’s not completely gone. I also had a headache today. However, ibuprofen and paracetamol worked well respectively.

12. Christmas songs. I can’t get some out of my head, but it’s lovely. This year is the first year I can appreciate Christmas.

This list was a bit random in its order, but I can’t seem to reorder the items on my phone and am too lazy to open my computer. I hope you enjoyed reading it anyway. I looked forward to linking up with #TToT, but saw it had come to a close for 2018 last week. The linky also is no longer open, but I hope some of those who visit me from #TToT regularly, will leave me a comment anyway.

Ten of The Most Memorable Gifts I Ever Received

Originally, I wanted to post about the lovely box filled with snacks and gifts I received for Christmas at day activities earlier this week. It’s a tradition here that employers give their employees such a box for Christmas. Of course, day activities isn’t a real job, but we get a Christmas box anyway. Ours was even more special, since it had been partly personalized for each of us by our staff. Maybe I could devote a post to this box, but then I remembered that Finish the Sentence Friday is about gifts too. I am twisting the prompt a little and not just writing about the gifts I received as a child or for Christmas specifically. After all, like I may’ve said before, Christmas isn’t as important a gift-giving celebration as St. Nicholas on December 5. Besides, I don’t always remember which gifts I got for St. Nick and which for my birthday. For this reason, I’m creating a list of the most memorable gifts I received throughout my life.

1. Wally, the stuffed whale. I got her when I came home from the NICU at three months of age. I slept with her till I was nineteen. Yes, I slept with stuffed animals that long! In fact, I still do. Now I don’t sleep with Wally anymore, but I still own her.

2. Roza, my favorite doll. No, Rosa isn’t spelled with a z in Dutch, but I had no idea. I got her from my paternal grandma for my third birthday. She had bought her in Berlin and we joked about the German word for “doll”, which is similar to the Dutch word for “poop”. Roza remained my favorite doll throughout childhood. When I was seven, I was interviewed for a Dutch magazine for blind children and said that my memory from three years back was tha tit was the year after getting my favorite doll.

3. A Barbie doll I got for my eleventh birthday. The reason this one is so memorable is the fact that my mother regretted giving it to me. She felt it wasn’t “age-appropriate” and I might need to go residential at the school for the blind if I didn’t catch up with my age peers socially and emotionally. I need a separate post to explain the (lack of) logic behind this reasoning.

4. Deodorant. I got this for my fourteenth birthday from my sister. No, not in a package that had other toiletries in it. Just a deodorant stick. She clearly wanted to send me a message. I didn’t get it.

5. A coffee maker. I got it for St. Nicholas when I was 20. I was going to live independently the next year and needed a coffee maker then. My husband is happy he didn’t drink coffee when I still had the apartment I used that coffee maker in, as it quickly got very moldy and dirty from lack of cleaning, as did the rest of the apartment.

6. A Planxty CD. This was the gift my husband gave me for the first birthday after we’d started dating in 2008. I only played it when my husband was there, as I really didn’t like it. Then again, he didn’t like my first gift for him, which was a book of previously unpublished philosophical works.

7. A liquorice “cake”. My husband and I got it for our wedding from my staff at the psychiatric resocialization ward in 2011.

8. The sensory cat soft toy I got for my birthday last year. It can be put in the microwave and then gives off heat and a lovely lavender scent.

9. Rainbow/Sofie, the stuffed unicorn I got from my previous day activities when I left there. She’s truly so cool! She has two names, because two readers of my blog each came up with an equally good one.

10. A weighted unicorn soft toy. Finally, I have to include something from this year’s Christmas box. It is, interestingly, another stuffed unicorn. This one is weighted as to provide sensory benefits. I’m having another contest to name her, like I did with Rainbow/Sofie.

What gifts will you always remember having received?

Gratitude List (December 7, 2018) #TToT

Hi and welcome to my gratitude list for this week. As always, I am linking up with #TToT. Here are the things I’ve been grateful for lately.

1. My writing spirit returning. In November, I only managed twelve blog posts. That’s really not as much as I’d like. I cannot say for sure that I’ll keep in the writing mood, but I certainly am today.

2. Getting to know new bloggers. I’ve been checking out a ton of bloggers and writers lately and am loving it.

3. St. Nicholas. We celebrated it at day activities on Wednesday. It was a little chaotic, but still lots of fun.

4. Festive candy. I love all the St. Nicholas and Christmas-related candy. So sad they don’t have it in the stores all year, although that’d probably be bad for my body.

5. My supportive staff. My support coordinator is still off sick, but my support worker and day activities staff have been incredibly accommodating. This week, my support worker offered to come on Thursday early in the afternoon even though that wasn’t supposed to be a support time for me at all. On Monday, I will be allowed to stay at day activities for the full day again, because my support coordinator was supposed to see me then.

6. Swimming. According to my Fitbit, I managed 53 laps this week. I can’t believe it, but oh well.

7. The stationary bike at day activities. Our staff are trying it out to see if they want to buy it for the day center. I hope they will. I went on it threee times this week. Unfortunately, my Fitbit doesn’t track my going onto it.

I can probably think of more things, but it’s time to go off to bed now. I hope you all had a great week.

Gratitude List (November 30, 2018) #TToT

It’s Friday again! I am not a big fan of the week-end, but I like Fridays nonetheless. I don’t relly know why. Maybe it’s just that they’re blue in my mind’s eye’s synesthetic perception and blue is my favorite color. Who knows?

Friday also means it’s time to link up with #TToT again. Here are the things I’ve been thankful for this past week.

1. Tarot apps. I don’t really believe in the spiritual basis of tarot, but I wanted to learn it anyway to use as a thought-starter. I read up about it on some blogs, but didn’t know how to make it work for myself, as I, being blind, cannot use real tarot cards. After looking for a while though, I found some accessible-with-VoiceOver tarot apps. Of course, I still miss out on the visual aspects, but I can still reflect on the card meanings.

2. Gratitude journaling. Okay, yeah, I am doing this now, but I also have been doing it in an iPhone app this past week. I couldn’t manage to do it daily, but I managed two tims since installing the app on Monday. It does help me.

3. Yet another extra afternoon at day activities. This was just once though. Because my support coordinator was off sick and my support worker or mother-in-law couldn’t come either, the staff got the manager’s permission to let me stay at day activities on Wednesday afternoon. It was really nice.

4. Horseback riding with my mother-in-law. My support worker couldn’t come on Thursday to go riding with me, but my mother-in-law could. It was a lot of fun.

5. Dinner with my in-laws. Alos yesterday, I decided on a whim to go have dinner with my in-laws. I was scared my husband would be mad with me for it, but thankfully he wasn’t. We ate delicious macaroni.

6. My fabulous husband. Need I say more? I just love him.

7. Good food. My husband has been experimenting with healthier food choices. On Tuesday, he made zucchini noodles. When on Wednesday he made rutabaga (Swedish turnip) fries, I was a little suspicious. However, I liked it.

8. A lie-in on Thursday. I didn’t have anything to do except for horseback riding at 4:30, so I slept in till 11AM. I also listened to some relaxing music in bed.

9. Relaxing in the snoezelen (sensory) room. On Tuesday, I took my phone into the sensory room with me and listened to whale sounds and music while lying on the water bed. I also took time to relax in the sensory room on Wednesday morning.

10. Chatting to a former nurse. Yesterday, a former nurse from the acute psychiatric ward I spent sixteen long months on in 2007-2009, sent me a text message. It wasn’t intended for me, so I told him who I was and that he probably had texted the wrong Astrid. He started chatting to me anyway. I don’t have a lot of memories of that time, but I did remember him.

What have you been thankful for this past week?

Gratitude List (November 23, 2018) #TToT

It’s been forever since I last shared a gratitude list. Since yesterday was Thanksgiving in the United States, I felt it’d be about time again that I post one. Here goes. As usual, I’m linking up with #TToT.

1. An extra afternoon at day activities. In fact, I started writingg this post while there. As of last week, I go to day activities each Tuesday and Friday for the whole day (and Monday and Wednesday mornings). I am loving it.

2. Horseback riding. I had to shift my riding lessons to another day to be able to go to day activities for the whole day on Friday. The only day off I now still have is Thursday. The riding instructor didn’t have a volunteer then to help me, but my support worker offered to help me. Yesterday was the first time I went riding on a Thursday. It was great!

3. A long walk with my support coordinator. Normally, we walk to the ferry at the end of my road and back. This is about 2.5km total. On Wednesday, I asked her to walk in the other direction. We walked all the way to the next village and back. This totals over 3km.

4. Chinese takeaway. On Sunday, my father-in-law came to our house to watch soccer and other men’s programs (that I secretly do like) with my husband. Usually, he “cooks” for us on these days and this time, it was Chinese. I loved it. I did suffer bowel cramps and bloating for several days after it, but who cares?

5. French fries for lunch. To continue on the food track, we had French fries for lunch at day activities on Wednesday. The reason was they still had some money that needed to be spent by the end of the year. The staff were initially worried that we wouldn’t have a full meal, but we definitely did! It was so tasty! I was a little scared that my husband would be angry because of my weight gain, but he wasn’t.

6. My new stuffed bear. I already got it two weeks ago, but am still so grateful for it. My mother-in-law won it at an event she went to for the animal shelter she works for. I’m calling it Little Bear, because my husband has a big bear too. That one is a little damaged and the littles not-so-secretly want another one, so that we have both little and big bear for ourselves.

7. Swimming. I went swimming with day activities again on Tuesday. This time, I swam a record 52 pool lengths.

8. Getting my hair done. On Friday, the support coordinator at my day activities group braided my hair. I didn’t even know I had long enough hair for that, but apparently I do. On Tuesday, a staff at another group made an even more beautiful braid.

9. New books to read. Last week, I moved all my eBooks and Bookshare books from my computer to my iPhone, because I could no longer read them on my computer. I have since been greatly enjoying reading. I haven’t bought any new books as of yet, but I did download several books off Bookshare.

10. My mood still being pretty good. I can’t say it’s great, but it’s not bad either.

What have you been thankful for in the past week?

Activities That Give Me Inner Peace

I’ve been feeling a bit low again, but not as low as I was early last month. I’m not even really depressed, but just rather uninspired. I’d rather play games on my iPHone than do something productive, like blogging. To get myself writing again, I looked at The Self Exploration Journal once again. One of the prompts is about activities that give you inner peace. Here goes.

1. Yoga. I really need to do this more often. I don’t practice yoga much, as it feels like exercise yet doesn’t lead to weight loss. However, it does have other benefits. For example, it can help with my flexibility. It can also definitely help me find inner peace.

2. Meditation. I have Insight Timer, a free meditation app, on my phone. I love it, but I don’t practice meditation nearly enough. I tried it again yesterday, but when I was in the middle of a guided meditation, my husband came home.

3. Listening to soothing music. I used to always have calming whale sounds on when in the snoezelen (sensory) room at my old day activities. Unfortunately, I couldn’t copy the CD when moving day activities and it’s no longer being sold. I have yet to try to listen to my own soothing music on Spotify when in the sensory room. I really want to do more imagery-based activities using soothing music too.

4. Walking. I love going for walks. It truly helps me process my thoughts and move towards greater inner peace. It’s a more active way of creating inner balance, whereas the above three activities are more passive. I mean, yes, yoga requires movement, but it doesn’t require as much movement as does walking.

5. Exercise. Going on the elliptical has the same effect as walking, but amplified. I do this alone, whereas I always go on walks with other people. This means that I can quietly process my thoughts when on the elliptical, while at the same time getting my much-needed activity.

6. Writing. I really want to do this everyday, like I did when starting this blog. I really want to do more freewrites or diary entries too. This should definitely help me process my thoughts and gain inner peace.

What activities give you inner peace?

Gratitude List (October 26, 2018) #TToT

Man, I really am falling into a writing rut. I don’t even know why. I’m still not feeling too well, but I wouldn’t say I’m seriously depressed either. For a bit in early October, I did feel extremely low, bu I picked up the pieces again reasonalby soon.

Today, to get myself motivated for writing again, I’m participating once again in #TToT. It’s not a weekly gratitude list anymore and I may be sharing some things I’ve been grateful for over the past few weeks.

1. A skirt-wearing day in October! This was already a few weeks ago, but I’m still so thankful for it. About two weeks ago, the temperature rose to 26 degrees Celsius and I loved it!

Generally speaking, the weather has been extremely mild here with hardly any rain. We got some rain only over the last few days and that wasn’t a lot. Today is one of the first days it’s really rather cold.

2. Sleep. Like I said above, fall weather came late this year but it well and truly came. I am very sensitive to cold, so I’ve been complaining for a few days that it’s cold already. This means that nothng’s cozier than crawling under the covers against my husband or with my sensory cat. The sensory cat is a soft toy that can be put in the microwave and then gives off heat and a lavender scent.

3. Swimming. At day activities, we go swimming every other Tuesday. Two weeks ago, I was a bit sick, so didn’t go. This week I did though. It was lovely. My Fitbit activity tracker says I swam 1200m total, which I can’t believe but oh well.

4. A full day at day activities. Three weeks ago, I got permission to come to day activities one full day a week in addition to the three other mornings. I now go on Tuesdays for a full day and Mondays, Wednesdays and Fridays in the morning. I am still settling in a bit but so far I love it.

5. Making smoothies. I really, really need to get into a healthier eating habit again. I haven’t been on the scale in months and I’ve probably gained lots of weight. To get myself motivated, I bought a lot of frozen fruit and a can of soy milk last Monday. Bananas were sold out, so my husband bought those on Tuesday. Yesterday, we made a banana-strawberry-soy milk smoothe and it was delicious!

6. Horseback riding again. Some of my fellow clients at day activities go horseback riding at my riding school on Friday afternoons. I go on Friday afternoons too, but usally the class after theirs. Today, one of these other clients was on vacation, so my staff offered to ask whether I could come in her place and I could. My assigned support worker from day activities walked beside my horse. It was a lot of fun!

7. My very accommodating staff. My support coordinator and home support worker are going out of their way to help me. So are my day activities staff. Particularly, they offered me to come to day activities two full days on December 27 and 28, since the other days of that week, the center is closed for Christmas. They’ll have room for me even on that Thursday, which is normally my day off. I’m so grateful for this!

8. Accessible games on the iPhone. I never took much of an interest in accessible computer games, because I believed most would be very boring. Now this week I decided to take a look at the AppleVis directory of iOS apps in the Games category. Of course, most games that are really popular with sighted people, are totally inaccessible. However, some accessible games are pretty cool after all. I so far downloaded Dice World, which is a collection of six dice games, and Alter Ego.

Alter Ego was originally created as a fully text-based game in 1986 but was adapted for use on the smartphone. It is a game in which the scenario is that you’re born and will eventually die. The life you lead in between will depend on your answers to a lot of multiple-choice questions. On my first round playing, I chose to be a very angry, rebellious baby and ended up with burns from an iron in infancy and killed by a kidnapper in childhood.

9. Twister fries! I have no idea whether twister fries exist in other parts of the world and, if so, whether they’re really called twister fries. They are my favorite type of fries, but they had apparently been taken off the menu at my local cafeteria. Last week at his once-a-week round to the cafeteria, my husband informed me that he had a nice surprise for me and it turned out they were back. I enjoyed them both last week and this week. I also love love love the African-style burger they have on the menu.

10. My mood being slightly better. Like I said, I had a really low few days earlier this month. Over the past two weeks or so, my mood seems to have been slowly but steadily improving. I cannot say I feel good, but I don’t feel that bad either.

Four Skills I’m Pretty Good At #Write31Days

Welcome to day 15 in my #Write31Days challenge on personal growth. Today, I have another list post for you. One of Lisa Shea’s journaling prompts on self-esteem has us write about our skills. What things are you pretty good at? Here goes.

1. Writing. I’m by no means a bestselling author – I have only had one piece of writing published in a book so far. I also make a lot of typeos in my writing. Overall though I consider my writing to be pretty good.

I started writing at about eight-years-old, wanting to become a children’s fiction author once I’d grow up. Now my husband is one of my worst critics when it comes to my children’s fiction, saying my stories aren’t very imaginative to say the least. Then again, when he compliments me on my blog posts, I take it all the more to heart.

2. Calendar calculation. You didn’t know that’s a skill? It is! My husband can’t tell whether October has 30 or 31 day without looking at the calendar, so I’ve got to believe that calendar calculation is a skill. It refers to being able to tell what day a given date in the past or future falls on. I’m not nearly as good at it as I used to be some twenty years ago, but am still pretty good.

3. Researching topics of interest. When a topic captures my interest, I can research it for days on end and will quickly get to know a lot about it. As such, I know a lot about psychiatry – more than some so-called professionals would like me to know. The flip side si that I cannot convert all my knowledge into practice. For example, I know a lot about soap making, but after those first few attempts, I haven’t tried making soap on my own again.

4. Relating to other people in a unique way. Particularly to people with cognitive, intellectual or developmental disabilities. I consider myself pretty good at relating to my fellow clients at day activities. As such, I have been known to come up with some ideas for sensory activities.

What skills are you pretty good at?