Tag Archives: Husband

Blogging

I am once again joining in with #JusJoJan. Yesterday I did write, of course, but I didn’t link up, since my post wasn’t for the prompt. Today’s prompt is to share about your blogging endeavors. Why did you start blogging? How did you come up with your theme? How has blogging affected your life? And so on.

I probably shared this on my older blogs a couple of times already, but I don’t think I jotted about my blogging on here. I was probably destined to be a blogger, as even as a young teen in the late 1990s, I longed for someone to read what I’d written. Not my parents, of course, but I was pretty open about my writing otherwise. My father at one point joked that I showed my new best friend my diary the first time she visited me. I didn’t, but I did show her some personal writings of mine. Those got her to feel pity for me. The friendship wasn’t healthy to begin with, as I was needy and clingy. The friendship ended not even half a year later. Today, I won’t go into that. It only serves to prove that I was very open in my writing from an early age on.

I got a computer with Internet access in May of 2002, when I was fifteen. Within six months of that, I’d started an online diary. The contents of that diary, unlike those of many of my later attempts at keeping a blog, are still available online. Their original location, on DiaryLand, might even still exist.

In February of 2007, I created my WordPress account and moved the contents of my diary to my first legitimate blog. This diary had over the years started to contain some more essay-like posts besides the diary-style navel-gazing. However, with DiaryLand, there was no way of organizing your posts by categories or tags. My parents criticized me for being too personal in my diary. I didn’t intend on becoming less so, but now I could put all my navel-gazing into a category called “Personal” for people to skip.

I have had three blogs (if I include this one) that were lasting. First, I had said blog moved from DiaryLand. Then I had Blogging Astrid, which I originally intended to keep alongside this blog. That didn’t work.

A Multitude of Musings, the blog you are now reading, is, in fact, a restart of another relatively long-lasting blog I wrote in 2011. I am a bit sad that I deleted its content years ago, but I can’t undo that. Still, my stats say the day I had the most views was in 2011.

Blogging has had a huge impact on my life. My husband checked out my blog – the one that had been moved from DiaryLand – before he asked to meet me in real life. This meant he already knew me pretty well before we’d first met. In this sense, my marriage makes up for the friendship I wrote about above, as my husband chooses to stick by me despite my openness. I don’t encourage him to read my blog now, but if he wants to, he can. He’s occasionally been cross with me for sharing something about him. I try only to share the positive now.

Why did you decide to start blogging? How has blogging impacted your life?

Gratitude List (December 21, 2018)

It’s Friday again, yay! Last week I skipped my gratitude list post. Not because I didn’t have much to be thankful for, but because I wanted to write some other things and was feeling sick with a cold. Today, I’m taking my chance to do the post. I have a lot to be thankful for this past week. Here goes.

1. The wonderful Christmas box I got last week. I already wrote about it last week, but I want to mention it here too. I particularly love Snowflake, the stuffed unicorn. I also loved the fleece blanket I got in my package. I sat covered in it on Saturday when my cold was at its worst.

2. My cold being almost over. I am still a little sniffy, but with how bad my cold felt last Saturday, I”m truly grateful it’s much better.

3. My staff being well again. My support coordinator was off sick for a few weeks, but late last week, she returned to work. She first visited me on Wednesday. My nurse practitioner, who was off sick even longer, returned to work this week too. I had a good appoitnment with him.

4. A Christmas meal at day activities. On Tuesday, we had a delicious lunch. It was a little chaotic, but good too.

5. Horseback riding again. It was rainy yesterday, but thankfully we could still go on an outdoors ride.

6. Eating delicious tuna macaroni with my mother-in-law. She went horseback riding with me and after that, I ate at her house. It was just the two of us, so I could decide what we had.

7. The application for long-term care being mailed. It was sent out yesterday. It was a little hard reading the application, because my staff had to fill out how impaired I am in various areas on a 0-3 rating scale. I got quite a few 3s.

8. My husband being supportive. He showed his support of me even when I disclosed some rather embarrassing aspects of the long-term care application (ie. The fact that I am quite impaired in my personal care). He knows to some extent, of course, but still it’s a little awkward to admit.

9. All the Christmas decorations at day activities and some at home too. I didn’t use to like those. In fact, the first Christmas of my psychiatric institutionalization, I even pulled them all off the wall on my ward. Now I like a little Christmassy cheer.

10. The weighted blanket a staff made for my day activities group. She gave it to us a few weeks ago and I may’ve mentiooned it before, but then I mention it one more time. I love being in the sensory room and lying under it.

11. Painkillers. I had bad shoulder pain last Tuesday and still it’s not completely gone. I also had a headache today. However, ibuprofen and paracetamol worked well respectively.

12. Christmas songs. I can’t get some out of my head, but it’s lovely. This year is the first year I can appreciate Christmas.

This list was a bit random in its order, but I can’t seem to reorder the items on my phone and am too lazy to open my computer. I hope you enjoyed reading it anyway. I looked forward to linking up with #TToT, but saw it had come to a close for 2018 last week. The linky also is no longer open, but I hope some of those who visit me from #TToT regularly, will leave me a comment anyway.

Gratitude List (November 30, 2018) #TToT

It’s Friday again! I am not a big fan of the week-end, but I like Fridays nonetheless. I don’t relly know why. Maybe it’s just that they’re blue in my mind’s eye’s synesthetic perception and blue is my favorite color. Who knows?

Friday also means it’s time to link up with #TToT again. Here are the things I’ve been thankful for this past week.

1. Tarot apps. I don’t really believe in the spiritual basis of tarot, but I wanted to learn it anyway to use as a thought-starter. I read up about it on some blogs, but didn’t know how to make it work for myself, as I, being blind, cannot use real tarot cards. After looking for a while though, I found some accessible-with-VoiceOver tarot apps. Of course, I still miss out on the visual aspects, but I can still reflect on the card meanings.

2. Gratitude journaling. Okay, yeah, I am doing this now, but I also have been doing it in an iPhone app this past week. I couldn’t manage to do it daily, but I managed two tims since installing the app on Monday. It does help me.

3. Yet another extra afternoon at day activities. This was just once though. Because my support coordinator was off sick and my support worker or mother-in-law couldn’t come either, the staff got the manager’s permission to let me stay at day activities on Wednesday afternoon. It was really nice.

4. Horseback riding with my mother-in-law. My support worker couldn’t come on Thursday to go riding with me, but my mother-in-law could. It was a lot of fun.

5. Dinner with my in-laws. Alos yesterday, I decided on a whim to go have dinner with my in-laws. I was scared my husband would be mad with me for it, but thankfully he wasn’t. We ate delicious macaroni.

6. My fabulous husband. Need I say more? I just love him.

7. Good food. My husband has been experimenting with healthier food choices. On Tuesday, he made zucchini noodles. When on Wednesday he made rutabaga (Swedish turnip) fries, I was a little suspicious. However, I liked it.

8. A lie-in on Thursday. I didn’t have anything to do except for horseback riding at 4:30, so I slept in till 11AM. I also listened to some relaxing music in bed.

9. Relaxing in the snoezelen (sensory) room. On Tuesday, I took my phone into the sensory room with me and listened to whale sounds and music while lying on the water bed. I also took time to relax in the sensory room on Wednesday morning.

10. Chatting to a former nurse. Yesterday, a former nurse from the acute psychiatric ward I spent sixteen long months on in 2007-2009, sent me a text message. It wasn’t intended for me, so I told him who I was and that he probably had texted the wrong Astrid. He started chatting to me anyway. I don’t have a lot of memories of that time, but I did remember him.

What have you been thankful for this past week?

Resisting an Impulse #Write31Days

Welcoe to day 16 in #Write31Days. Today, I picekd yet another prompt from The Self Exploation Journal, but I twisted it around. Thhe prompt was to write about the last time you did something impulsive. Instead, I am going to write about the last tire I resisted a destructive impulse

I have been struggling a lot over the past few weeks. My husband has been working extremely long horus this past week and has been very stressed about it. Thankfully, he contacted his manager on it today and will be working slightly more normal hours from tomorrow on. However, today he wasn’t home till 9:30PM.

I hadn’t slept very well last night, because my husband was stressed out yesterday and I took over his stress. In my mind, it became worse and worse, until I was imagining my husband dying in a crash with his truck today. Needless to say, I was quite tired when I got to day activities in the morning.

On top of that, one of the regular staff was off sick, so there was a substitute. Because this regular staff would remain on sick leave tomorrow, the staff worked out who to find as a sub. Wednesdays are the busiest days at day activities, so I was quite scared that one staff would need to handle the full group on her own.

By 2:30PM, I was very irritable. I didn’t understand the jokes people were cracking. I was constantly worrying too about how to make it through the evening. I got an impulse to elope. Instead, I decided to try to walk around the building on my own while the staff checked on me tha tI was headed in the right direction. I did fine.

My staff did notice that I wasn’t coping thoguh. She asked whom I could call if I wasn’t coping while home. I decided to call my mother-in-law right then and she informed me my husband had already asked that I could eat with my in-laws.

Had I actually given in to the impulse and run off, people would’ve been a lot more worried than they already were. Besides, since this was my second time going to day activities for a full day, I might have been suspended. I don’t think I’d have gotten in any physical danger had I actually run off, as the day activities place is in a very quiet neighborhood. However, I’m still glad I didn’t give in to the urge.

The Most Important People in My Life #Write31Days

Welcome to day 13 in #Write31Days. It’s getting harder and harder to keep up with the challenge, but I was reminded by my husband not to give up now that I have nearly two weeks’ worth of effort put into it.

Today, I’m making a list of the most important people in my life. I’ll also explain why these people are so important to me. I tend not to come across very appreciative of wht people mean to me. I mean, the people in my life right now are mostly very supportive, and yet I don’t tell them so that often.

1. My husband. Do I really need to explain? I first met him in 2007, when I was struggling to hold on living independently. He supported me throughout my 9 1/2 years in the mental hospital and through the nearly eighteen months we’ve been living together now. He also fully supports my choice of trying to get into supported housing, even if it means we can only see each other on week-ends. He’s also just the most loving person around. Hubby, I love you!

2. My in-laws. As regular readers know, I am in low contact with my own parents. For this reason, I’m all the more thankful to have my in-laws. My mother-in-law particularly helps me with important meetings and with other decisions I need to make.

3. My home support staff. I first met my support coordinator in August of last year, when I finally got approved for home support. At first, she mostly just monitored my care with my old support worker, but eventually, she had to step up more. She now sees me usually once a week. My new support worker – the old one was moved to a team in another area – sees me twice a week. They’re both very supportive and skilled and especially my support coordinator goes out of her way to help me.

4. My day activities staff. My assigned support worker is one of the nicest staff working at that group. Not that the other staff aren’t nice, but she is the one who most truly gets me. The other staff truly try too. I am so glad to be here. Now I must say my old day activities staff were nice too, but they weren’t equipped with the information to properly support me. Besides, the manager was probably more stacked against my “psychiatric” needs.

Who are the most important people in your life?

20 Things I’m Grateful For in Life #Write31Days

Welcome to day twelve in #Write31Days. Man, I’m late writing my post today. I really planned on writing two posts today, one for #Write31Days and the other for Ten Things of Thankful. I may write a #TToT post for this week tomorrow anyway, but I also found a great topic that fits both #Write31Days and #TToT. It is to list twenty things (or people, I assume) you’re grateful for in your life. Here goes.


  1. My husband.

  2. My family. Even though my family of origin isn’t very supportive, they are still there. My in-laws are especially importantt to me.

  3. My great team of home support and day activities staff.

  4. My online friends. I don’t have any real-life friends other than my husband, but I appreciate the network of supportive people online.

  5. Our cat, Barry.

  6. My relatively good physical health.

  7. The fact that I’m mentally stable.

  8. More than enough food in the pantry.

  9. A roof over my head.

  10. My computer and iPhone.

  11. Social security.

  12. Never having had to worry about money.

  13. A relatively good health care system. It could be better, but it could also be a lot worse.

  14. Psychiatric medication.
  15. The sensory room at day actvities and sensory supplies at home.

  16. Sleep.

  17. Being a lot fitter than I used to be.

  18. The readers of my blog. I can’t seem to stick to just one blog project forever, so I’m glad some people keep following me.

  19. The weather. It’s really good for October right now, but generally speaking it’s never all that bad.

  20. Being alive!

I must admit that in writing this post, I did cheat a little by checking back at a similar post I’d written several years ago. I could probably think of enough things without cheaitng, but that would take me longer, and it’s now time for bed.

A Letter to My Younger Self #Write31Days

Welcome to day nine in my #Write31Days series on personal growth. Today, I chose yet another prompt from The Self-Exploration Journal. It asks what one piece of advice you would give your younger self if you could go back in time. Ths question couldn’t be more timely, as I’m facing a lot of regrets from the past right now as I face the decision to apply for long-term care. I am spinnning this questioon around a little and going to write a letter to my younger self. I don’t have an idea for the age of this younger self, but the piece of advice should be the same anyway.

Dear Younger Self,

This is your 32-year-old self writing. I want to reassure you that I see you. I see your struggles for autonomy, for self-determination. And yet, I see your struggles with your limitations. You have yet to come to terms with the fact that you’re multiply-disabled.

I see that peope try to control you. Your parents consider you worth parenting only so long as you prove that you’re going to give back by contributing to society. Your support staff try to please your parents, sending you out to live on your own despite knowing this isn’t in your best interest. Your psychologist in Nijmegen, no matter how helpful she is in some respects, still doesn’t provide you with the opportunity to go into the right type of care. She, like eveyrone before her, values your intelligence over your need for support. Your psychologist in Wolfheze blames you. She robs you off your last bit of self-determination by kicking you out of the institution without proper after care.

I want to reassure you. I see your needs. I’m fighting for them to be met. I don’t have enough support yet, but I have people around me who are fighting for it with me. I can’t promise you that you will ultimately get into long-term care, as that’s up to the funding agency to decide. I can however assure you that I’m fighting for you.

If there’s one piece of advice I could give you, it’s to fight for yourself. No-one can live your life but you. You don’t owe your parents anything. You’re past that point. Care staff do only their job. This isn’t to discount the good work my current care staff do, but it’s just that, work. They will eventually fade out of our life. Even your husband, the only person who will most likely stick by you for a long time to come, doesn’t have the right to control you. I know you want to please him, because you love him, but that is different. Pleasing your husband is founded on love, not authority, and it is mutual. Even so, your husband does not live your life. Ultimately, the only person who will live the entirety of your life with you, is you.

I don’t mean this to criticize you at all. I see how hard it is for you to stand up to controling people. But you’ll learn to do so in time.

With love,

Astrid

What one piece of advice would you give your younger self?

Leaving the Path Paved for Me

Today’s Finish the Sentence Friday is a stream-of-conscious writing exercise on the prompt of “leave”. I have not been inspired to write much lately, not even snippets that aren’t “blog-worthy” but that I could’ve published here anyway. Yet this prompt immediately turned on a lightbulb in my head.

Yesterday, I made the decision to schedule an appointment with the care consultant for the agency I receive home support and day activities from. We’re going to discuss my options regardign going into supported housing. There I said it and now I’m hoping my parents never read this blog.

Nothing has been decided yet, except for the appointment with the care consultant having been set for October 4. It isn’t certain that I can get funding for supported housing. I’m not getting my hopes up too high, as there are huge budget cuts to long-term care for people with lifelong disabilities, which is the path I want to go. I could also go the community support route, where I could go into supported housing for the mentally ill temporarily. That most likely wouldn’t be of much benefit, as it’s heavily focused on “rehabilitation”.

However, assuming I can get into supported housing one way or the other, this will mean I’m leaving my husband. Not as in divorce, as living together is not required to be married here in the Netherlands and my husband has said he doesn’t want to leave me. In fact, he supports me every step of the way.

It also, however, means leaving my passing-for-non-disabled self behind. It means leaving the path paved for me by my parents (and my last institution psychologist). I’ll be a huge disappointment to them. I have been thinking of how to break the news to my parents. Thankfully, I can wait with that until the point, should it come, where I’m actually moving.

Since I scheduled the appointment yesterday, I’ve been flooded with memories. I told my support staff at day activities and that got me talking about the time I lived independently in 2007. At the time, I considered getting into supported housing too, but my support coordinator said I couldn’t be in their supported housing with my challenging behavior. This may be the case with my current agency’s supported housing too. That’s one advantage of independent living. After all, no matter how much I struggle in independent living, my husband won’t kick me out for needing too much care.

What I’m Excited About for the Coming Week

Today, DM over at Pointless Overthinking asks what excites you about the future. This is a really timely question, in a kind of ironc way. You see, I was pretty badly depressed most of the day and found looking even an hour ahead hard. Now that I have gotten some more clarity of mind, I am going to make a list of things that excite me at least a little bit about the upcoming week.

1. My support coordinator coming over tomorrow. I texted her this afternoon to let her know I’m not feeling that well. She had just come back from vacation this morning, so I felt pretty guilty for having texted her, but the feeling of despair was stronger. At around 6PM, she called me back. She would originally only visit me on Thursday, but she offered to see if she could come tomorrow too. I said I’d much appreciate that. At 4PM, she’ll be here.

2. The good weather forecast. It’s said to be sunny and around 27 degrees Celsius here tomorrow.

3. Celebrating my seventh wedding anniversary on Wednesday. My husband already announced that he’s going to take pizza home after work then. I love pizza, particularly from American-style pizza chains like Domino’s and New York Pizza.

4. Horseback riding on Friday. Do I need to say more? Oh, I love Angie!

This isn’t all that much, but I’m still a little bit more cheerful now that I’ve written these things down. It isn’t that I’m magically no longer depressed. However, like gratitude for the things that happened in the past, excitement for things that are going to happen in the future, may help some.

The Greatest Moment of My Life

Today’s Question of the Day on Pointless overthinking is about the greatest moment of our life so far. I already briefly shared it in the comments, but I want to expand on my answer.

The greatest moment of my life so far is the moment my now husband proposed to me. This was June 4, 2010. I was 23-years-old and struggling with the aftermath of a traumatic childhood unfolding itself to me. My dissociative symptoms had becoem too unbearable to hide and I was slowly beginning to trust my staff at the psychiatric hospital resocialization unit with my feelings. That day, my named nurse invited my then still boyfriend into a room with me and her to explain some of my symptoms.

After that, my boyfriend took me to the place we had first met each other on September 19, 2007. It was a bus stop near the university’s dentistry department that I’d gotten off the bus from my home that day in 2007. Now, they were working on the road there, so we couldn’t sit at the bus stop. Instead, we sat down in the grass and my boyfriend proposed to me. I at first thought he was joking so I replied: “So you think that’s cool then?” He said yes and went on to propose we get married on September 19, 2011. “Mind getting married on a Monday?”

We chose our wedding date based on the fact that it was exactly four years since we first met. Four, for us, is a code word for kissing, because of a kind of wordplay in Dutch.

A week later, my boyfriend asked whether I’d informed my parents yet that we were getting married. I hadn’t, still thinking he had been joking. As such, I never said an official “Yes” to his proposal. That must’ve felt terribly hurtful to him. I told my parents, sister and grandma that evening.

My family’s responses were not overly supportive. My sister said we were a bit young (I would be 25 and my husband 22). My parents said we should go live together first. This is not a requirement for married couples anymore here in the Netherlands. We wanted to marry each other for no toehr reason than to prove our love. My parents felt, as did some of my professionals, including the psychologist who kicked me out of the hospital to live with my husband, that love didn’t mean much if you don’t live together as a couple. Fine by me, you’re entitled to your opinion, but we’re entitled to ours.

PoCoLo