Monthly Archives: October 2018

Weight Loss (Or Rather, Weight Gain) Update

It’s been months since I last posted an update on my weight loss and healthier living journey. My last update was very positive. This one, not so, but it has a silver lining.

I had not at all been following my diet. Not that I generally follow a specific diet, but when trying to lose weight, I try to moderate my food intake and limit myself on snacks and sweets. I don’t want to completely deny myself any sweets or snacks, but I really had been snacking far too much.

I wasn’t motivated to expose myself on the scale, so I didn’t weigh myself. Today though I did and the result was as expected: I’m now 71.3kg. This means I gained 2.4kg or roughly 5lbs in these three months. My BMI is over 30 once again.

Back three months ago, I was at my lowest weight in five years and had been thinking I could reach a weight in the lower sixties by the end of the year. Obviously, now I can’t. I’m not even sure my ultimate goal is to be at a healthy weight anymore, which for my height is 58kg. I had originally intended to reach that by January of 2020. Now I think I’d need to be content if I can get and keep my weight under 70kg and hence my BMI under 30.

Exercise-wise, I’ve not been doing as well as I wanted to either. I had set myself a goal for October of getting active everyday. Though it looks like I met that goal, I have to be more creative with what I consider “activity” than I’d originally intended on being. Today though was a great day, in that I got 95 active minutes according to my Fitbit and reached my daily step goal of 10,000 steps. Now that has me end this post on a positive note!

Developing My Fighting Spirit

Over at Pointless Overthinking, DM asked what circumstance got you to learn something surprising about yourself. I already responded there. I explained briefly about the time my psychologist removed my autism diagnosis and diagnosed me with dependent personality disorder instead. In this post, I’m going to expand on my answer.

In August of 2016, it had come to my attention that my psychologist had changed my diagnosis. I was at the time hospitalized long-term and had had an autism diagnosis ever since 2007. For a reason I still only partly understand, she had decided to remove it. I’m pretty sure she didn’t fully understand her own reasoning either, as she kept coming up with different excuses. When I involved the patient liaison person and requested an independent second opinion, she even started to negotiate diagnoses.

Being a little too trusting of people’s good intentions, I at first went along with her proposal of a new diagnosis. I wouldn’t get my autism diagnosis back, but I would get diagnosed with brain injury-related emotional issues, which still gave me a reason to believe my impairments weren’t imaginary. It made some sense, in that my psychologst said the brain bleed I had sustained as a baby, was her reason for removing my autism diagnosis.

By November though, my psychologist came up to me to say that she’d rediagnosed me yet again. This was it and there was no further room for negotiations. My diagnosis was changed to dependent personality disorder, borderline personality disorder traits and “developmental disorder” not otherwise specified. I didn’t know what that last one was, but I accepted it anyway.

A week after that, I found out that the “developmental disorder” had not been put into my records at all, but instead depressive disorder NOS had been written into my chart. In Dutch even more than in English, these words are so differently spelled that it couldn’t have been a typeo. My psychologist finally admitted that she’d not diagnosed me with any type of neurological or neurodevelopmental disorder and wasn’t intending to either. She said she’d written depressive disorder NOS into my file because a diagnosis on axis I of DSM-IV is required for someone to stay in the mental hospital. She was vague as to whether she believed I was depressed, being convinced that I was still mostly just dependent. A nurse added insult to injury by saying the psychologist did me a favor by giving me an axis I diagnosis.

When I was first told I’d been diagnosed with dependent personality disorder, I assumed that the psychologist would probably remove it if I fought it hard enough. After all, DPD is characterized by passivness, compliance and an inability to voice disagreements with others for fear of losing care or approval. She said she wouldn’t. Besides, suggestible as I am, I quite easily tacked off the five out of eight required criteria.

At first, I was just angry and defeated. Pretty soon though, my fighter insider, Leonie, emerged. I requested an independent second opinion and this time I left no room for negotiation. I got re-assessed for autism in early 2017 and got rediagnosed on May 1.

Readers who don’t know me, might be wondering why I care. Well, the reason I care about my diagnosis is that I experience significant limitations that can’t be explained by just blindness. I do try my best and this to me signals that something else is going on. My psychologist felt I was making up my impairments. She didn’t say so, but she did say I couldn’t be diagnosed with autism because of my brain injury, yet I couldn’t be diagnosed with that either. She felt that the fact that occupational therapy was mostly ineffective, proved that I had no self-confidence. Her way of helping me develop self-confidence was to kick me out of the hospital almost with no after care. It was effective, in that it did allow the figher insider to fully develop.

Only later did I find out that, even though she rationalizes her decision to this day, it probably wasn’t about me. There are significant budget cuts to mental hospitals, so my psychologist was under pressure to kick some people out. She picked me, probably because of my relatively young age and the fact that I wasn’t psychotic. She claims that dependent personality disorder was the most appropriate DSM-IV code for someone with bad institutionalization syndrome. That completely overlooks the fact that I’d not been admitted to hospital for no reason 9 1/2 years prior, of course.

Gratitude List (October 26, 2018) #TToT

Man, I really am falling into a writing rut. I don’t even know why. I’m still not feeling too well, but I wouldn’t say I’m seriously depressed either. For a bit in early October, I did feel extremely low, bu I picked up the pieces again reasonalby soon.

Today, to get myself motivated for writing again, I’m participating once again in #TToT. It’s not a weekly gratitude list anymore and I may be sharing some things I’ve been grateful for over the past few weeks.

1. A skirt-wearing day in October! This was already a few weeks ago, but I’m still so thankful for it. About two weeks ago, the temperature rose to 26 degrees Celsius and I loved it!

Generally speaking, the weather has been extremely mild here with hardly any rain. We got some rain only over the last few days and that wasn’t a lot. Today is one of the first days it’s really rather cold.

2. Sleep. Like I said above, fall weather came late this year but it well and truly came. I am very sensitive to cold, so I’ve been complaining for a few days that it’s cold already. This means that nothng’s cozier than crawling under the covers against my husband or with my sensory cat. The sensory cat is a soft toy that can be put in the microwave and then gives off heat and a lavender scent.

3. Swimming. At day activities, we go swimming every other Tuesday. Two weeks ago, I was a bit sick, so didn’t go. This week I did though. It was lovely. My Fitbit activity tracker says I swam 1200m total, which I can’t believe but oh well.

4. A full day at day activities. Three weeks ago, I got permission to come to day activities one full day a week in addition to the three other mornings. I now go on Tuesdays for a full day and Mondays, Wednesdays and Fridays in the morning. I am still settling in a bit but so far I love it.

5. Making smoothies. I really, really need to get into a healthier eating habit again. I haven’t been on the scale in months and I’ve probably gained lots of weight. To get myself motivated, I bought a lot of frozen fruit and a can of soy milk last Monday. Bananas were sold out, so my husband bought those on Tuesday. Yesterday, we made a banana-strawberry-soy milk smoothe and it was delicious!

6. Horseback riding again. Some of my fellow clients at day activities go horseback riding at my riding school on Friday afternoons. I go on Friday afternoons too, but usally the class after theirs. Today, one of these other clients was on vacation, so my staff offered to ask whether I could come in her place and I could. My assigned support worker from day activities walked beside my horse. It was a lot of fun!

7. My very accommodating staff. My support coordinator and home support worker are going out of their way to help me. So are my day activities staff. Particularly, they offered me to come to day activities two full days on December 27 and 28, since the other days of that week, the center is closed for Christmas. They’ll have room for me even on that Thursday, which is normally my day off. I’m so grateful for this!

8. Accessible games on the iPhone. I never took much of an interest in accessible computer games, because I believed most would be very boring. Now this week I decided to take a look at the AppleVis directory of iOS apps in the Games category. Of course, most games that are really popular with sighted people, are totally inaccessible. However, some accessible games are pretty cool after all. I so far downloaded Dice World, which is a collection of six dice games, and Alter Ego.

Alter Ego was originally created as a fully text-based game in 1986 but was adapted for use on the smartphone. It is a game in which the scenario is that you’re born and will eventually die. The life you lead in between will depend on your answers to a lot of multiple-choice questions. On my first round playing, I chose to be a very angry, rebellious baby and ended up with burns from an iron in infancy and killed by a kidnapper in childhood.

9. Twister fries! I have no idea whether twister fries exist in other parts of the world and, if so, whether they’re really called twister fries. They are my favorite type of fries, but they had apparently been taken off the menu at my local cafeteria. Last week at his once-a-week round to the cafeteria, my husband informed me that he had a nice surprise for me and it turned out they were back. I enjoyed them both last week and this week. I also love love love the African-style burger they have on the menu.

10. My mood being slightly better. Like I said, I had a really low few days earlier this month. Over the past two weeks or so, my mood seems to have been slowly but steadily improving. I cannot say I feel good, but I don’t feel that bad either.

What I’d Put Into a Self-Care Kit

So I eventually gave up on the #Writ31Days chalenge. I couldn’t cope. It had become too much of a burden. But I still want to write. Today, I am sharing another personal growth-inspired post. I am writing about those things I use to take care of myself. A Dutch blogger posted about using a self-care kit, which is a box with self-care/positive items in it. Here is what I’d put in my self-care kit.

1. My crisis plan. I cannot read print, so I’d have to either type out my plan in Braille, which is too much work, or put a simple reminder on the box lid to read my crisis plan.

2. Stuffed animals. I as well as the inner children love the stuffies! Rainbow/Sofie, the stuffed unicorn we got at our old day activities, is best used for fidgeting. The inner kids prefer our toy sheep. When we’re cold, we prefer the sensory cat, which you can heat in the microwave and then gives off a nice lavender scent.

3. Essential oils and wax melts. I love love love essential oils! I do happen to have some faith in aromatherapy too, even though I know that it’s not scientifically proven. I would still someday like to create my own mmassage products with essential oils, but for now I just diffuse them. I have a box filled with over 20 different oils.

I also love wax melts, althogh my husband often gets a headache from the strong scent. I particularly love fruity and sweet smells.

4. My sensory exercise products. I have an exercise ball, which obviously doesn’t fit into a box, but which I love anyway. My air stepper pad does fit in a box. I’d love to someday get a Flowee spiky mattress too.

5. Soothing music. Nowadays I don’t listen to CDs. I get all my music from Spotify. I have a custom playlist with soothing sounds and peaceful music. I also love a lot of playlists created by Spotify itself.

What would you put into a self-care kit?

Dreams I Had for Myself as a Child #Write31Days

Welcome to day 18 in #Write31Days. Today’s post is all about dreams and life visions. Specifically, I am sharing the dreams I had for myself as a child.

The first dream I remember having about what I’d be when I’d grow up, was a writer. I may’ve said as a KIndergartner that I wanted to be a princess or whatever, but as soon as I could write with some confidence, I wanted to make my career out of that. I remember my parents telling me pretty early on that writers usually don’t make a living writing, but I didn’t care.

As I said before, I started out wanting to write fiction. I didn’t keep a journal consistently until I was thirteen and fiction was all that I knew before then. I didn’t get access to the Internet until age fifteen, but by the time I had an Internet connection, I was hooked on non-fiction.

Another dream I had for myself as an older child and teen, was to become a teacher. My ideas varied as to which grade or subject I’d like to teach. I definitely looked up to my teachers, so it’s no surprise I wanted to be one.

When I was around twelve, I started to deveop a dream of becoming a psychologist. I wanted to help children who were likely to fall through the cracks, as I had a feeling I was. I started hoping every episode of my parents’ favorite news program had a feature on kids with psychological problems. Once, there was an episode on about autism and I was hooked. This was nearly ten years before my own autism diagnosis. I had a feeling I was somehow like the boy in the program. Similar with a seventeen-year-old girl who was being restrained in a psychiatric hospital in around 1997. She was too smart for intellectual disability services but didn’t belong in psychiatry either. Something clicked with me, but obviously I couldn’t put my finger to it. I still really can’t.

When I was sixteen, I developed another dream. I wanted to study in the United States once in college. I would be majoring in American studies at university in Nijmegen, which'd offer motivated, talented students the opportunity to study in the U.S. for six months in their third year. I was at the time pretty sure I'd be talented enough. I loved reading up about American cities on City-Data.com.

Looking back, obviously, I didn’t make any of my dreams come true. I write, but not for profit and I don’t intend on it ever at all. I have some education in psychology, but am nowhere near a degree.

At the back of my mind, there always was that seventeen-year-old girl in the isolation room in the psychiatric hospital. I’ve not become her either, but I’ve come close. Then I rose up above my fate and now I’m an advocate. I’m happy as I am now.

What I Like About My Body #Write31Days

Welcome to day 17 in #Write31Days. Man, this challenge gets hard and I have almost half the month still in front of me. Then again, I can show my persistence by continuing with it anyway. Today, I have yet another post about my body for you. I am going to describe the aspects of my body I like.

My body image tends to fluctuate a lot. Some of my insiders are not adjusted to living in an adult body, and as such they hate my feminine figure. I am quite curvy with large breasts, so I understand that’s difficult for the child and young teen alters. I must say though that most of the adult insiders are pretty content with my feminine body. It helps that my husband is attracted to my curves too.

The first thing I like about my body is my hair. I have long, dark hair. I need to make a hairdresser’s appointment soon, as it’s been almost six months since I had a haircut.

I also like my femininely narrow shoulders. My husband occasionally uses a quote from Schopenhauer about women with their narrow shoulders and broad hips being inferior. He doesn’t mean it seriously though and I also like my hips, although they’re not terribly broad.

Another thing I like about my body are my hands. I have pretty thin wrists and fair hands. Skip my nails for now, as I tend to bite them.

Lastly, as of recently, I’ve developed a greater appreciation of my feet. I used to have terrible toenail fungus. That is, until my husband sent me to the doctor and I got oral medication for it, since the topically-applied stuff wasn’t working. I still don’t really like my feet, but I don’t hate them as much as I used to.

What parts of your body do you like?

Resisting an Impulse #Write31Days

Welcoe to day 16 in #Write31Days. Today, I picekd yet another prompt from The Self Exploation Journal, but I twisted it around. Thhe prompt was to write about the last time you did something impulsive. Instead, I am going to write about the last tire I resisted a destructive impulse

I have been struggling a lot over the past few weeks. My husband has been working extremely long horus this past week and has been very stressed about it. Thankfully, he contacted his manager on it today and will be working slightly more normal hours from tomorrow on. However, today he wasn’t home till 9:30PM.

I hadn’t slept very well last night, because my husband was stressed out yesterday and I took over his stress. In my mind, it became worse and worse, until I was imagining my husband dying in a crash with his truck today. Needless to say, I was quite tired when I got to day activities in the morning.

On top of that, one of the regular staff was off sick, so there was a substitute. Because this regular staff would remain on sick leave tomorrow, the staff worked out who to find as a sub. Wednesdays are the busiest days at day activities, so I was quite scared that one staff would need to handle the full group on her own.

By 2:30PM, I was very irritable. I didn’t understand the jokes people were cracking. I was constantly worrying too about how to make it through the evening. I got an impulse to elope. Instead, I decided to try to walk around the building on my own while the staff checked on me tha tI was headed in the right direction. I did fine.

My staff did notice that I wasn’t coping thoguh. She asked whom I could call if I wasn’t coping while home. I decided to call my mother-in-law right then and she informed me my husband had already asked that I could eat with my in-laws.

Had I actually given in to the impulse and run off, people would’ve been a lot more worried than they already were. Besides, since this was my second time going to day activities for a full day, I might have been suspended. I don’t think I’d have gotten in any physical danger had I actually run off, as the day activities place is in a very quiet neighborhood. However, I’m still glad I didn’t give in to the urge.

Four Skills I’m Pretty Good At #Write31Days

Welcome to day 15 in my #Write31Days challenge on personal growth. Today, I have another list post for you. One of Lisa Shea’s journaling prompts on self-esteem has us write about our skills. What things are you pretty good at? Here goes.

1. Writing. I’m by no means a bestselling author – I have only had one piece of writing published in a book so far. I also make a lot of typeos in my writing. Overall though I consider my writing to be pretty good.

I started writing at about eight-years-old, wanting to become a children’s fiction author once I’d grow up. Now my husband is one of my worst critics when it comes to my children’s fiction, saying my stories aren’t very imaginative to say the least. Then again, when he compliments me on my blog posts, I take it all the more to heart.

2. Calendar calculation. You didn’t know that’s a skill? It is! My husband can’t tell whether October has 30 or 31 day without looking at the calendar, so I’ve got to believe that calendar calculation is a skill. It refers to being able to tell what day a given date in the past or future falls on. I’m not nearly as good at it as I used to be some twenty years ago, but am still pretty good.

3. Researching topics of interest. When a topic captures my interest, I can research it for days on end and will quickly get to know a lot about it. As such, I know a lot about psychiatry – more than some so-called professionals would like me to know. The flip side si that I cannot convert all my knowledge into practice. For example, I know a lot about soap making, but after those first few attempts, I haven’t tried making soap on my own again.

4. Relating to other people in a unique way. Particularly to people with cognitive, intellectual or developmental disabilities. I consider myself pretty good at relating to my fellow clients at day activities. As such, I have been known to come up with some ideas for sensory activities.

What skills are you pretty good at?

Book Review: Where Has Mummy Gone? by Cathy Glass

I bought Where Has Mummy Gone? by Cathy Glass on Kindle right when it came out early last month, but didn’t finish it till yesterday. Not because it wasn’t a good book, but because I struggled to make time for reading. Today, I’m reviewing this foster care memoir.

Synopsis

The true story of Melody, aged 8, the last of five siblings to be taken from her drug dependent single mother and brought into care.

When Cathy is told about Melody’s terrible childhood, she is sure she’s heard it all before. But it isn’t long before she feels there is more going on than she or the social services are aware of. Although Melody is angry at having to leave her mother, as many children coming into care are, she also worries about her obsessively – far more than is usual. Amanda, Melody’s mother, is also angry and takes it out on Cathy at contact, which again is something Cathy has experienced before. Yet there is a lost and vulnerable look about Amanda, and Cathy starts to see why Melody worries about her and feels she needs looking after.

When Amanda misses contact, it is assumed she has forgotten, but nothing could have been further from the truth…

My Review

The subtitle listed on Amazon for this book is “A Young Girl and a Mother Who No Longer Knoews Her”. From this subtitle, I already guessed that Amanda, Melody’s mother, might’ve suffered some form of brain damage. Perhaps she was in an accident and had gone into a persistent vegetative state? The thought of dementia also crossed my mind, but I dismissed this when I found out early in the book that Amanda was only 42.

Despite the fact that I had some inkling of where this book might be headed, the twists and turns did surprise me. It was heartbreaking to read about Amanda’s decline. The book ended on a really bittersweet note.

I loved Cathy Glass’ narrative style. I deveoped a liking for each of the characters. Amanda, of course, elicited pity with her illness, but I also got to appreciate the attempts she’d made at caring for Melody before she was taken into foster care. Cathy maintains a mostly unbiased yet positive attitude throughout the book. I thoroguhly enjoyed the book, despite its emotive subject matter.

Book Details

Title: Where Has Mummy Gone?: A Young Girl and a Mother Who No Longer Knows Her
Author: Cathy Glass
Publisher: Harper Element
Publication Date: September 6, 2018

Ways to Take Better Care of My Body #Write31Days

Welcome to day 14 in #Write31Days. Last week, I wrote a post on the topic of what my body is telling me. Today, I’m writing on a similar theme. The prompt from The Self Exploration Journal I’m using today supposes that your body is a temple. How could you better take care of it?

There are many ways in which I could take better care of my body. I’m already doing a lot better though than I used to. Like, until I was eighteen, I wouldn’t touch toothpaste and would brush my teeth with just water. Then, I went to the dentist to find out I had seven cavities. Filling them (without anesthetic) was horrible. From that point on, I started using toothpaste, buut I still had trouble sticking to a regular teeth-brushing routine. I struggled with this for many years to come and have only recently been able to consistently brush my teeth twice a day. I’m still not doing it very well, but I’m getting better.

Another way to take better care of my body is by getting off my behind. As a child, I was fairly active, but my activity level declined sharply in my teens. I got a computer, which meant hours upon hours of screen time. At this point, I’m still pretty sedentary, although I love walking. Since I cannot leave the house on my own, I need to think of ideas to fit in more activity at home. I already go on the elliptical regularly, but I’m thinking I could be dancing too.

Sleep is another aspect of body care that I’ve improved in. As a child and teen, I’d get no more than five to six hours of sleep a night. Now, I make sure that on week days, I get eight to nine hours of sleep. On week-ends, I get much more. That probably means that I’m still not fully rested from those eight to nine hours on week days, but I do’t know how to fit in even more sleep.

An aspect of body care in which I really need to pick up the pieces again, is food. I am doing better than I was when in the institution, when I’d binge on candy twice to three times a week. However, I’m still snacking a lot more than I should.

In what ways could you take better care of your body?